Carrying Out Research Among Persons with Disabilities and their Relatives – Selected Ethical Issues

Marta Sałkowska


The paper tackles issues related to selected both ethical and practical aspects of conducting research among persons with disabilities and their relatives that constitute a vulnerable social group. The author analyzes its consequences in the research process, discusses the significance of the research problem undertaken both for the development of academic knowledge and for research participants, and analyzes the conditions for obtaining informed consent. Limits of sociological interview and researcher’s engagement are also discussed.

This Article is made in Open Access, available under a Creative Commons Attribution-Share Alike 4.0 license.

This article is a translated and modified version of the text that was published in the previous issue of “Zoon Politikon”. See:
Marta Sałkowska, Wybrane etyczne aspekty realizacji badań wśród osób z niepełnosprawnościami i ich bliskich, "Zoon Politikon" (8) 2017, DOI: 10.4467/2543408XZOP.17.003.9267.

Słowa kluczowe: Ethics, vulnerable social group, persons with disabilities, qualitative research

Becker H.S. (1967), Whose side are we on?, „Social Problems” Vol. 14

Ciuk S., Latusek-Jurczak D. (2012), Etyka w badaniach jakościowych [Ethics in qualitative research], (in:) Badania jakościowe. Podejścia i teorie. Tom I [Qualitative Research. Approaches and Theories. Volume I], (Ed.) Jemielniak D., Wydawnictwo Naukowe PWN, Warszawa

Chase S.E. (2005), Narrative Inquiry: Toward Theoretical and Methodological Maturity., (in:) The Sage Handbook of Qualitative Research. 3rd Edition, (Eds.) Denzin N.K., Lincoln Y.S., Sage Publications, Thousand Oaks–London–New Delhi

Creswell J.W. (2009), Qualitative Inquiry & Research Design. Choosing Among Five Approaches, Sage Publications, Thousand Oaks

Flick U. (2007), Designinh Qualitative Research, Sage Publications, Thousand Oaks–London–New Delhi–Los Angeles–Singapore–Washington

Liamputtong P. (2007), Researching the Vulnerable. A Guide to Sensitive Re-search Methods, Sage Publications, London–Thousand Oaks–New Delhi

Lofland J., Snow D.A., Anderson L., Lofland L.H. (2006), Analyzing Social Settings: A Guide to Qualitative Observation and Analysis, Wadsworth Thomson, Belmond CA.

Niedbalski J. (2009), Niepełnosprawność intelektualna w perspektywie ba-dań socjologicznych. Rozważania nad zastosowaniem metod jakościowych [Intellectual disability in the perspective of sociological research. Considerations on qualitative methods’ application], (in:) Metody, techniki i praktyka badań społecznych [Methods, techniques and practice of social research], (Eds.) Bąk A., Kubisz-Muła Ł., Wydawnictwo Akademii Techniczno-Humanistycznej, Bielsko-Biała

Sałkowska M. (2015), Matka Downa. Piętno. Znaczenia. Strategie [Down’s Mother. Stigma. Meanings. Strategies], Zakład Wydawniczy NOMOS, Kraków

Surmiak A. (2016), Wybrane problemy etyczne w naukowych badaniach na zlecenie. Refleksje etnografki [Some Ethical Issues in Contract Research. Ethnographer’s Reflections], „Przegląd Socjologii Jakościowej”, t. 12, nr 3,

Thoits P.A. (2011), Resisiting the Stigma of Mental Illness, “Social Psychology Quarterly” Vol. 74, No. 6

Rocznik interdyscyplinarny

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